Table 2 Description, source, and timing of the primary and secondary study outcomes
Primary or secondary | Name of outcome | Specific measure to be used | Survey timepoints |
|---|---|---|---|
Primary | Caregiver burden subscale | Subscale of the Caregiver-reported Pediatric Tracheostomy Health Status Instrument (PTHSI) survey [14, 15] | 4-week |
Secondary | Caregiver burden subscale | Subscale of the Caregiver-reported PTHSI | 6-month |
Secondary | Medical utilization | Modified subset of the Medical Complications Associated with pediatric Tracheostomy scale (MCAT) | 6-month |
Secondary | Medical utilization | Modified subset of the Medical Complications Associated with pediatric Tracheostomy scale (MCAT) | 4-week |
Secondary | Readmission rates | Chart review will calculate the rate of ED visits and readmissions | 6-month |
Exploratory | Number of Readmissions | Chart review will calculate the number of readmissions and ED visits | 6-month |
Secondary | Frequency of pediatrician communication | EMR and pediatrician reported communication with pediatrician prior to and shortly after discharge | 6-month |
Secondary | Pediatrician satisfaction | Pediatrician reported Satisfaction with discharge communication items | 6-month |